For many Alpha-1 patients around the world, research and patient support programs are still limited, leaving too many without effective treatments or essential resources. Steven highlights why targeted research, clinical trials, and strong support programs are critical to improving care and quality of life for those living with Alpha-1. #Alpha1Awareness | Alpha-1 Foundation
1:20
For many Alpha-1 patients around the world, research and patient support programs are still limited, leaving too many without effective treatments or essential resources. Steven highlights why targeted research, clinical trials, and strong support programs are critical to improving care and quality of life for those living with Alpha-1. #Alpha1Awareness | Alpha-1 Foundation
2K views1 year ago
FacebookAlpha-1 Foundation
Early detection of Alpha-1 saves lives and helps people stay healthier, longer. Alpha-1 can affect daily life and overall well-being, but when it is identified early, patients have more treatment options and better long-term outcomes. Rabiha encourages everyone at risk to get screened for Alpha-1. Knowledge is power, and early detection gives patients the best chance to protect their health and quality of life. #Alpha1Awareness | Alpha-1 Foundation
1:16
Early detection of Alpha-1 saves lives and helps people stay healthier, longer. Alpha-1 can affect daily life and overall well-being, but when it is identified early, patients have more treatment options and better long-term outcomes. Rabiha encourages everyone at risk to get screened for Alpha-1. Knowledge is power, and early detection gives patients the best chance to protect their health and quality of life. #Alpha1Awareness | Alpha-1 Foundation
10.3K viewsNov 3, 2025
FacebookAlpha-1 Foundation
An Alpha-1 diagnosis can change life in many ways, but with the right treatment and care, patients can manage the condition and live fuller, healthier lives. Listen to Alex’s encouraging message and learn how timely care makes a meaningful difference. #Alpha1Awareness | Alpha-1 Foundation
1:25
An Alpha-1 diagnosis can change life in many ways, but with the right treatment and care, patients can manage the condition and live fuller, healthier lives. Listen to Alex’s encouraging message and learn how timely care makes a meaningful difference. #Alpha1Awareness | Alpha-1 Foundation
2.4K viewsNov 10, 2025
FacebookAlpha-1 Foundation
Alpha-1 Awareness Month 2025 may be ending, but the work continues. This November, we shared powerful stories, raised visibility, and underscored the challenges Alpha-1 patients face worldwide. We urge decision-makers to act on current health policy opportunities and improve recognition, access, and treatment for all Alpha-1 patients. Our thanks to the Members of the European Parliament for their support! #Alpha1Awareness | Alpha-1 Foundation
1:05
Alpha-1 Awareness Month 2025 may be ending, but the work continues. This November, we shared powerful stories, raised visibility, and underscored the challenges Alpha-1 patients face worldwide. We urge decision-makers to act on current health policy opportunities and improve recognition, access, and treatment for all Alpha-1 patients. Our thanks to the Members of the European Parliament for their support! #Alpha1Awareness | Alpha-1 Foundation
1K views11 months ago
FacebookAlpha-1 Foundation
Across Europe, Alpha-1 patients face unequal access to life-saving therapies. Fernanda calls on European decision-makers to strengthen cross-border cooperation and guarantee that no Alpha is left behind. #Alpha1Awareness | Alpha-1 Foundation
2:14
Across Europe, Alpha-1 patients face unequal access to life-saving therapies. Fernanda calls on European decision-makers to strengthen cross-border cooperation and guarantee that no Alpha is left behind. #Alpha1Awareness | Alpha-1 Foundation
3.8K viewsNov 14, 2025
FacebookAlpha-1 Foundation
Many people live with Alpha-1 without knowing it, often experiencing unexplained symptoms for years. Just like Gerry says, don't ignore possible symptoms of Alpha-1 and talk to your doctor about getting tested. To learn more about Alpha-1 symptoms, visit: https://alpha1.org/symptoms/ | Alpha-1 Foundation
2:13
Many people live with Alpha-1 without knowing it, often experiencing unexplained symptoms for years. Just like Gerry says, don't ignore possible symptoms of Alpha-1 and talk to your doctor about getting tested. To learn more about Alpha-1 symptoms, visit: https://alpha1.org/symptoms/ | Alpha-1 Foundation
4.3K viewsNov 7, 2025
FacebookAlpha-1 Foundation
As a mother of two Alpha-1 kids, Anabela knows the importance of early diagnosis. She learned her first child was a ZZ Alpha at age 3, during her second pregnancy, and now she is committed to raising #Alpha1Awareness so no family feels unprepared or alone. To learn more about A1F's Alpha-1 Kids program, visit: https://alpha1.org/alpha-1-kids/ | Alpha-1 Foundation
1:55
As a mother of two Alpha-1 kids, Anabela knows the importance of early diagnosis. She learned her first child was a ZZ Alpha at age 3, during her second pregnancy, and now she is committed to raising #Alpha1Awareness so no family feels unprepared or alone. To learn more about A1F's Alpha-1 Kids program, visit: https://alpha1.org/alpha-1-kids/ | Alpha-1 Foundation
3.5K views11 months ago
FacebookAlpha-1 Foundation
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For individuals with Alpha-1 lung disease, plasma-derived therapies are the only available treatment, yet many European countries are facing critical plasma shortages. MEP Chastel urges the public to donate plasma and help Europe move toward plasma self-sufficiency so Alpha-1 patients can access the life-saving therapies they rely on. #Alpha1Awareness | Alpha-1 Foundation
2K views1 year ago
FacebookAlpha-1 Foundation
1:30
As #Alpha1Awareness Month comes to a close, we thank the Members of the European Parliament and everyone who joined us in raising awareness for Alpha-1. Together, we've highlighted the urgent need for early diagnosis, better support, and improved care for Alpha-1 patients. Let’s keep the momentum going and continue advocating for policies that make a difference in the lives of those affected by Alpha-1. 💜 | Alpha-1 Foundation
356 viewsNov 30, 2024
FacebookAlpha-1 Foundation
0:23
Too many Alpha-1 patients in Europe face barriers to the treatment they need. Member of the European Parliament Tomislav Sokol advocates for better worldwide access and recognition for the Alpha-1 community. Join the movement! #Alpha1Awareness | Alpha-1 Foundation
285 viewsNov 16, 2024
FacebookAlpha-1 Foundation
0:32
Managing Alpha-1 From Diagnosis to Long-term Management
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Everyone with COPD should be screened for Alpha-1
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